Muscular Mayhem
| Page: 1, 2 > | Entries: 15 |
15.10.2008 14:44, Nichole Blandford  : |
| I'm so happy we have reconnected and so sorry you have been going through this all these years! Take care, Nichole |
| 21.07.2008 17:23, Christine DM/ILD : |
| Hi there, Hope you are doing ok. I LOVE the puppies.... Thinking of you today, realised its ages since you posted on TMA, Best wishes, Christine. xx |
13.11.2007 09:32, kelene  : |
| Good luck with your Drs appointment today. |
| 05.09.2007 14:23, Valerie Harnish from USA : |
| Kristin- I came across your page and admire you for putting yourself out there. I have DM and was dx'd in July 2005. My CPK was 13866! Straight to the Pred and MTX, but I also did the minocycline. I did really well and "bounced" back. After moving out-of-state and starting a new job, the past year has been a roller coaster and tweaking of meds. Most recently I went to Iowa and had the IV Clindamycin, it has helped tremendously! My muscles and joints were aching so badly I kept rubbing them, even though my hands were too tired to do it...you know the drill. Anyway, I did have immediate relief and was able to flex my feet without feeling like the muscles were being pulled from the bone. I have continued to get some strength back and my CPK is down to 2650 from a high of 8700 this past July. I am at 35mg Pred daily, 17.5mg MTX weekly, 200mg minocycline bid and various other supplements...23 to be exact;) I wondered if you take Magnesium? I take that (250mg) at bedtime with a muscle relaxer and a 5mg Ambien. I think that the Ambien will help you get the rest that you so desperatley need. You may wake up feeling like you have been hit by a mack truck and there are still days when I have to go back to bed and sleep a few extra hours, but at least it's sleep:) I also have my N.P. write for 10mg pills and then I cut them..that way I can get a two month supply from one copay. It has also gone generic and my pharmacist told me that people have been saying it is not as effective, I haven't tried the generic that I have yet because I have such an abundance of the name-brand. I have recently had to take medical leave from my position as a dental assistant and have filed for disability. It just got to be too much stress and co-workers are not understanding. Hope this helps:) Thanks for listening:) |
| 10.08.2007 10:06, Christine DM/ILD: |
| Great Blog Kristin....my son does one too, and I love reading that. I shall bookmark yours. xx |
| 15.07.2007 20:28, Zara : |
| Hi Kristin, just checking your updates, so sorry about the incident with your niece, we think we have the strength to do anything untill put to the test. Thanks for posting the updates. |
| 31.05.2007 08:21, Zara : |
| Way to go Kristin, you do a great job with your page. We can all relate to it all. I will be buying one of your ribbons soon. Another thing you do to contribute so much to Myositis is selling these to raise money nad you do such a great job with the Pictures. |
| 14.05.2007 22:00, madlon glenn : |
| great job kristin!! Madlon and Bentley |
| 14.05.2007 12:48, jackie : |
| i have realized this past month, that no matter what we our faced with, that god and are freinds and family can help us be strong and we can go forward threw good and bad days......jackie |
| 14.05.2007 10:19, Fay Stancliff : |
| Stay strong and foscued and you will be back on top in no time. Its such an up and down journey but one we cannot give into! Hope you got my picture! Fay |
| Page: 1, 2 > | Entries: 15 |
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